Day 18
We seemed to have a good day today. John went with me to the grocery so he could look for things he might feel comfortable eating. We now have a dozen types of lemonade and as many different pastas. Nothing tastes right to John and least of all, water, which he needs to drink constantly. He drove the car back from the store, which is technically against the "rules," but being able to drive is a level of freedom that means something.
John now has this amazing portable IV pump. It is about the size of a portable CD player and fits in a "camel-type" pack, along with a liter of fluids. He has to use it 5 hours or more a day. I learned how to operate it, but he handles it all himself. He even walked around the block wearing it. With his Andy Warhol wig and a hat, you would never know that he wasn't just another University of Washington student around town.
By the end of the day, he was pretty worn, but he is showing good progress and talking about things he wants to do when he gets back to Atlanta.
It's getting on in the day and we start work here on Eastern time (Debbie has a conference call at 5:00 AM), so that's enough for today.
John now has this amazing portable IV pump. It is about the size of a portable CD player and fits in a "camel-type" pack, along with a liter of fluids. He has to use it 5 hours or more a day. I learned how to operate it, but he handles it all himself. He even walked around the block wearing it. With his Andy Warhol wig and a hat, you would never know that he wasn't just another University of Washington student around town.
By the end of the day, he was pretty worn, but he is showing good progress and talking about things he wants to do when he gets back to Atlanta.
It's getting on in the day and we start work here on Eastern time (Debbie has a conference call at 5:00 AM), so that's enough for today.
