Saturday, December 24, 2005 

A Christmas Story - A Poem in Prose, an Allegory of Appreciation

Long, long ago in a life far, far away, an evil, sadistic sister of the hero of this tale decreed that her siblings and all the grandchildren must give the family's patriarch a Christmas story each Yule that he could treasure in a book to read throughout the year. This form of cruelty that only a mother could conceive was inflicted on each, every Christmas Eve since, with regular reminders to all to write rising, as the number of days before Christmas waned.

Children, and even those who pass for adults, when reminded to write would moan and postpone the exercise, often until the morning of that eve, finally stopping their shopping to reflect on something worth sharing that each had made themselves. Then on Christmas Eve, before exchanging presents, each was called on by the Christmas Queen of Cruelty to read aloud his or her creation. The sister relished these moments of torture and often captured each on video, no doubt so she could relive over and again the pleasure of each standing before the others to read his or her creation.

Traditions, like sores, persist because they are picked at again and again, and so it continued in this story of stories. There were tales told of crossing the country in a 16 foot sardine can, of being so poor that three children had to share a single cookie, apocryphal tales of mean tricks the brother played on his sisters, imaginative weavings of children's whimsy and, once in a while, apologies for having forgotten.

The stories grew to be a tapestry made of paper that captured images from the hearts of those woven together by the fact that they were family. In time, the book, the family and the the individuals grew older, which time has a way with, and also closer from sharing something made by hand from the heart for the head of the family each Christmas Eve.

And so your hero writes these thoughts to share, for himself and this year for all of his family. The star of Bethlehem appeared in the night, and genuine goodness is shared when one is most in need. We have seen our share, and a bit more, of dim days and dark nights this year. There was one person who was there during it all, my dad - by phone, in person, to listen, to help and, when needed,to be present.

Fathers and sons often don't share things about each other's heart that stories read aloud at Christmas capture. The hero of this story, which is me, learned a lifetime of lessons this year about a dad's love and about how to be as good a father himself: that there is strength in humility, wisdom in listening, and hope in helping.

As as for that sister, thanks for the tradition, but beware, for next year that brother may write about you.

Wednesday, December 21, 2005 

Change Happens

And most things these days cost more than coins. We have decided to move to a place that will fit our not so traditional family. We ran across this house while driving through Decatur (Debbie's old haunt), which is an "intown" city/suburb next to Emory University and east of Atlanta proper.

The house was built in 1930, and is thus a comparably "new" house. It has been nicely renovated so that Debbie and I can live in the attic and John in a very livable basement with its own entrance. The original space on the main floor has two bedrooms and will accomodate Courtney and guests. We think we can complete a contract on it and close in February.

Moving, with all the work involved, is not what we would have considered, especially from our 100 year old Craftsman, but change can be good. John is excited about having a "place" of his own and Courtney, who has been in the house may like it enough to want to join us, I fear.

We currently have workmen in the house refinishing woodwork, and I've refurbished the attic and basement. Currier and Ives never pictured a Christmas the way we seem to live them. On the other hand, I don't suppose I've ever been happier than I am these days. "Bedlam" was a home in England to which the insane were commited long ago. It might be a good name for our new home.

Sunday, December 18, 2005 

Holy Days

Last weekend Debbie and I were able to attend Dad and Dottie's Christmas music program, which was beautifully staged and performed. Afterwards, we were introduced to a number of folks who have prayed for John religiously (in every sense) for the past year. There is no one word for how that opportunity felt. If John ever meets his donor, he may have the same feelings of wonder and thanks. Both amount to gifts of life;

John is adjusting to several more medication fine tunings. He will start taking an antibiotic inhalation treatment once a month instead of Bactrim. His antirejection drug is now down to 5 mg a day and will reduce the magnesium he takes as a supplement. He remains at a low level of Prednisone, but he may be able to try without it soon.

His face has grown puffy from the steroids, and his hair is completely different from before - straight, fine and thin. Except for various scars from tests and tubes, he would pass for a normal person though.

We skipped Christmas and Hanukah completely last year. This year, a tree, a Menorah and a few other things will be all the decorating we (I) do. There will be four of us here and well though, and that is a houseful of holidays that tinsel can't replace.

Friday, December 09, 2005 

Time and Again

A year ago, John was in the hospital at Emory and in what was (and I hope will always be) the worst days of his disease. I've been trying to get a sense of how level his plateau is going to be as he settles into what will have to do for "normality". I hope and expect a slow strengthening for him and occasional bumps, but hopefully not much more. Still, I've come to hate, or at least fear, the sound of the telephone because any call could bring bad news. The ocean is pretty flat when you look at it from the shore, but when you are at sea, ups and down are all you feel. I suspect that is what we will learn to live with.

John participates in a trial with Seattle on anti-fungal medication which requires him to FedEx blood samples weekly to the clinic there. Although they follow closely his results and care at Emory, the trial means that they are also regularly testing his blood themselves.

Yesterday, he received a call from Seattle asking that he go in today for additional blood samples and send them out. Me mentioned that they thought his neutrophils (the working antibodies in the white blood cells) looked low. Probably nothing other than an example of what it is like with this kind of life. I don't get sea sick, but the emotional ups and downs from such little things still cause me to react with similar symptoms. John remains cautious, appropriately so, but he doesn't seem to worry or dwell, which is good.

Debbie found a house in Decatur that would fit our needs well. Naturally, it costs too much, but John, for the time being and always potentially again, would have a whole floor to himself in the daylight basement, with room to park and an entrance of his own. It's just a thought for now, but one to consider. We are working on our house, and having it worked on, in the meantime - insulation, stripping and painting, gutter covers and lots more.

Courtney returns Sunday from a few days in California, and we have lots to do for her before she leaves for school in Peru. It will be a different and better Holiday season this year - perhaps as busy, but more our new norm for life.

Sunday, December 04, 2005 

100% Good News

There is no better way to relate good news than to just say it. John's bone marrow test results came back Friday and he shows no signs of leukemia. More importantly, his stem cells appear to be 100% those of his donor.

The best tests might miss some leukemia cells and can't determine what cells will "go bad." His stem cells are all those of his donor now, rather than the ones with "dysplasia" from before that turned cancerous. That means he has good reason to hope for a long life with no relapse.

Except for some mild GVHD of the stomach that low doses of Prednisone are handling and low immunity still, he is in as good a shape as anyone could be for all he has been through. Time should help with those issues, and it seems that he may have lots of time now.

That's plenty for the moment. It's raining outside, but it's a good day inside.

About me

  • I'm Randy Cadenhead
  • From Atlanta, Georgia
  • My son John was diagnosed in November of 2004 with Acute Myelogenous Leukemia (AML). Since then, he underwent three rounds of chemotherapy and received a bone marrow transplant in Seattle. This site is about his experience, as seen through his father's eyes. Links to John's website and to his own live journal are below.
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