Holy Days
Last weekend Debbie and I were able to attend Dad and Dottie's Christmas music program, which was beautifully staged and performed. Afterwards, we were introduced to a number of folks who have prayed for John religiously (in every sense) for the past year. There is no one word for how that opportunity felt. If John ever meets his donor, he may have the same feelings of wonder and thanks. Both amount to gifts of life;
John is adjusting to several more medication fine tunings. He will start taking an antibiotic inhalation treatment once a month instead of Bactrim. His antirejection drug is now down to 5 mg a day and will reduce the magnesium he takes as a supplement. He remains at a low level of Prednisone, but he may be able to try without it soon.
His face has grown puffy from the steroids, and his hair is completely different from before - straight, fine and thin. Except for various scars from tests and tubes, he would pass for a normal person though.
We skipped Christmas and Hanukah completely last year. This year, a tree, a Menorah and a few other things will be all the decorating we (I) do. There will be four of us here and well though, and that is a houseful of holidays that tinsel can't replace.
John is adjusting to several more medication fine tunings. He will start taking an antibiotic inhalation treatment once a month instead of Bactrim. His antirejection drug is now down to 5 mg a day and will reduce the magnesium he takes as a supplement. He remains at a low level of Prednisone, but he may be able to try without it soon.
His face has grown puffy from the steroids, and his hair is completely different from before - straight, fine and thin. Except for various scars from tests and tubes, he would pass for a normal person though.
We skipped Christmas and Hanukah completely last year. This year, a tree, a Menorah and a few other things will be all the decorating we (I) do. There will be four of us here and well though, and that is a houseful of holidays that tinsel can't replace.
