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Tuesday, April 26, 2005 

Day 156

It is still Monday here, but through the magic of time travel, it may not be where you are, or I should hope, when you read this. First, the headlines.

Minutes before we sat down with the doctors at 4 PM this afternoon, they received word that for medical reasons John's donor required another week's delay. Thanks to the mysteries of the laws of privacy, we can't know why, nor can John's doctors.

(The vagaries of blog formatting don't lend themselves to footnotes, but consider this one. Since the days of Aquinus and Anselm, only two further proofs of the existence of God have been offered up. One is the magic of what a baseball can do over the distance of sixty feet-six inches, which proves that God is a good sport. The other is that a "privacy lawyer" is not allowed to know why his son's bone marrow donor isn't well enough to donate, which proves that God enjoys a good lawyer joke .)

Although this delay is quite late in the process and neither we, nor the doctors, know the reason, we were assured that a week likely means that and is not the medical equivalent of an airline intercom announcement. What it means, however, is that John's schedule is set back for that period, and he will not be undergoing the preparatory steps scheduled for Tuesday that involved removal of the existing tubes in his arms and insertion (by Dr. Hickman) of the replacement "Hickman line" in his chest.

Fortunately, John's medical status remains as good as a leukemia patient could have, so a week's delay is only that. Still, we have seen two donors come and go and now his third is not so certain. If you add all the strike and outs in an inning, they add up to the chances of a cat with nine lives, but leukemia is neither a game nor a folk tale, so one is left to wonder.

John's response to this news was, "Well, whatever...", which was trustingly mature. When we left the session, he asked to pick up supplies to publish a print "zine" (if you have to ask, you are completely lame, trust me) of his 24 hour comic from the weekend. He is focused on building his publishing empire, and I'm using the perspective of distance to construct a better way to handle some of the privacy concerns at work.

Well, it's late, or perhaps early and time for tomorrow. After today's curveball, I'm hoping for a change-up, and maybe a smile from God.

About me

  • I'm Randy Cadenhead
  • From Atlanta, Georgia
  • My son John was diagnosed in November of 2004 with Acute Myelogenous Leukemia (AML). Since then, he underwent three rounds of chemotherapy and received a bone marrow transplant in Seattle. This site is about his experience, as seen through his father's eyes. Links to John's website and to his own live journal are below.
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