Day 157
We learned more yesterday on the medical reasons for John's donor's delay, but not very much. The donor will be receiving a CT scan and a chest xray and it will be late next week before we are likely to learn more. That's all John or his doctors can know. The rights and morals of lives that become literally intertwined can raise unusual and interesting questions. The donor could have found reason to worry about his own health in getting ready for the transplant and has the right to address it privately. We wait for a transplant and wonder.
In the meantime, the doctors and the National Marrow Donor Registry are actively working through the next candidates to line up another donor. There is another matched donor with detailed HLA typing, which should avoid having to start over from scratch. If we have to change donors, however, we would likely have a delay of at least 2 weeks. Fortunately, John is in remission and otherwise well, so we are not as desperate as some patients might be.
John handle the news well enough, with a "Whatever" and a "What can you do." He spent most of the day working on publishing his comic zine and even walked almost 2 miles to Kinko's and back.
John mentioned yesterday that his old MP3 player was "dying" and added, "Have you noticed how many of my things that has happened to?" We attributed it to "bad Kharma", which we hope is being siphoned off into computers and game systems.
It's interesting that you can laugh at, and joke about death, when it is real to you and often in the back of your mind. I think we treat it like a deadline for a term paper or court filing - you know you might not make it if something goes wrong, but you just aren't going to let that happen. I think our daily thoughts are about getting well. It's the one's you don't let into your mind that keep you up at night.
In the meantime, the doctors and the National Marrow Donor Registry are actively working through the next candidates to line up another donor. There is another matched donor with detailed HLA typing, which should avoid having to start over from scratch. If we have to change donors, however, we would likely have a delay of at least 2 weeks. Fortunately, John is in remission and otherwise well, so we are not as desperate as some patients might be.
John handle the news well enough, with a "Whatever" and a "What can you do." He spent most of the day working on publishing his comic zine and even walked almost 2 miles to Kinko's and back.
John mentioned yesterday that his old MP3 player was "dying" and added, "Have you noticed how many of my things that has happened to?" We attributed it to "bad Kharma", which we hope is being siphoned off into computers and game systems.
It's interesting that you can laugh at, and joke about death, when it is real to you and often in the back of your mind. I think we treat it like a deadline for a term paper or court filing - you know you might not make it if something goes wrong, but you just aren't going to let that happen. I think our daily thoughts are about getting well. It's the one's you don't let into your mind that keep you up at night.
