Day 169
One of the first things we were told was that the schedules you are given will change and that, for sure, is true. As of this afternoon, John has tomorrow and the weekend "off". Monday, he has blood work done and begins a drug to prevent seizures (the thought alone coud cause one) from the chemotherapy that comes. Beginning Tuesday morning, he is given busulfin, which is apparently so toxic that he must have blood tests every two hours to measure its ingestion. This goes on for four days. On Saturday, the 21st he goes into the hospital for two days of inpatient chemo. Monday is a "day of rest". His transplant takes place on Tuesday, May 24.
We met John's new rotational doctor today and learned this latest schedule, which seems pretty secure. John seems more comfortable with what is to come now. His only open concern is the itching from where his chest was shaved for his port. He is handling the rest within his zone of acceptance, if not comfort. Anyone with any sense would know how immense and complex "the rest" can be.
It is a great comfort to him, us and herself to have Courtney here in this time. Her presence is a gift and a help to her as well.
Our nights end early here, because Debbie and I start the day on Eastern time each morning.
The distraction of work is a blessing. We both get pleasure out of our work, but these days, work is a gift to enjoy and we do.
Whenever I visit an island somewhere, I leave looking back and memorize how it looks, thinking I might never come back. Every day here and now is like that. I suppose that is how all ought to all live, only without the lingering lens some of us see through.
John has been enjoying online polls recently about where you fit in various odd categories. We all took one I found today on religion. I consider such things the deepest and most personal of topics, but it was fun to compare where we fell in the uneducated online world: open, caring, sincere and intelligent spanned the range we all fell within. I suppose the rest is, and should be, between you and "God". This is a valuable time to find those answers.
We met John's new rotational doctor today and learned this latest schedule, which seems pretty secure. John seems more comfortable with what is to come now. His only open concern is the itching from where his chest was shaved for his port. He is handling the rest within his zone of acceptance, if not comfort. Anyone with any sense would know how immense and complex "the rest" can be.
It is a great comfort to him, us and herself to have Courtney here in this time. Her presence is a gift and a help to her as well.
Our nights end early here, because Debbie and I start the day on Eastern time each morning.
The distraction of work is a blessing. We both get pleasure out of our work, but these days, work is a gift to enjoy and we do.
Whenever I visit an island somewhere, I leave looking back and memorize how it looks, thinking I might never come back. Every day here and now is like that. I suppose that is how all ought to all live, only without the lingering lens some of us see through.
John has been enjoying online polls recently about where you fit in various odd categories. We all took one I found today on religion. I consider such things the deepest and most personal of topics, but it was fun to compare where we fell in the uneducated online world: open, caring, sincere and intelligent spanned the range we all fell within. I suppose the rest is, and should be, between you and "God". This is a valuable time to find those answers.
