Untitled
The number of boxes that litter our new home is slowing beginning to fold. The pace has slowed for lack of any place to put things. Our house reflects the earth in the sense of being too crowded. Still, the three story "high rise" effect has proven enjoyable for all. We all live just far apart enough to allow enjoying being together. It certainly helps to be nearby to see that the kids are eating as they should and getting good and early medical care.
We had John's eyes checked and he needs glasses to read now, which explains the headaches. As with most chemo/transplant patients, his eyes are also dry and rough. He has a prescription for that, which may help some of the discomfort.
Little daily things that we take for granted, he cannot. Walking barefoot in the grass or digging in the dirt are dangerous for him. Going outside in the daylight without a hat risks GVH from the sun. Small things, but noticable when you live that way. Most of all, asking yourself, "Is it OK to do this?" time and again must be wearing, although probably also a lesson some of us could learn from.
Each of us is really going through much the same process here - learning to live again, testing and finding limits and needs to fill. It is good to have family able to share the process with.
We had John's eyes checked and he needs glasses to read now, which explains the headaches. As with most chemo/transplant patients, his eyes are also dry and rough. He has a prescription for that, which may help some of the discomfort.
Little daily things that we take for granted, he cannot. Walking barefoot in the grass or digging in the dirt are dangerous for him. Going outside in the daylight without a hat risks GVH from the sun. Small things, but noticable when you live that way. Most of all, asking yourself, "Is it OK to do this?" time and again must be wearing, although probably also a lesson some of us could learn from.
Each of us is really going through much the same process here - learning to live again, testing and finding limits and needs to fill. It is good to have family able to share the process with.
